At CHARMER, our PPI team are part of the entire lifespan of the project from conception through to dissemination. Academics, researchers, clinicians and PPI are working in partnership to improve patient experiences and outcomes.
Katherine Murphy – PPI Lead
“My interest is in patient safety, giving patients a voice, making sure that patients are engaged and involved in their care and treatment and that they are provided with the right information at the right time to enable them to make informed choices so they have access to high quality safe care.
Involvement in the CHARMER Project gives me the opportunity to contribute to a patient safety issue from the patient perspective. This is an important Research Study and will have a positive impact on patient experience and outcome.
I am delighted to be a co applicant and PPI Lead on this important Research Programme working very much as part of a team with Clinicians, Researchers, Academics , patients, carers and the public. Listening to what patients, carers and the public say helps to make research ethical, complete and better quality with meaningful results
Effective and meaningful PPI when done appropriately ensures that the Research addresses the issues that are important to patients.”
“I have been involved in PPI in Norfolk for about 9 years, after a number of careers. Originally a Biology teacher, I have also been a university administrator and a teacher of English as a Foreign Language in the Middle East before working for 17 years for the police in a number of roles including research and Procurement. As relatives, friends and I have aged and developed health problems, I have become increasingly interested in the care of older people and concentrated on PPI studies relating to geriatric care. CHARMER provides an opportunity for me to contribute to an important, highly relevant study which will result in improved outcomes for older people.”
“My interest in health research stems from my care and support for a number of family members, many of them elderly with a range of health issues. I saw the impact of long term use of numerous medicines, sometimes proving to be more debilitating than the conditions they were prescribed to treat. Since my retirement in 2012 I have been a lay member of the local PPIRes (Public and Patient involvement in Research) panel and have been involved in a variety of research studies as advisory group and steering group member. My working life included recruitment, finance and in later years I worked as a Chartered Internal Auditor managing the review of a broad range public sector systems. I was also a soft fruit grower for several years while my three children were growing up.”
“I have personal experience of managing several long-term conditions since my teenage years, including major surgery and numerous other inpatient and outpatient encounters. I also co-ordinate care for my disabled 99-year old father and my 93-year old aunt in a care home, so I have diverse experience of accessing healthcare in different settings. I retired in 2018 from Imperial College where I had worked closely with healthcare professionals from many disciplines while researching technologies for collecting healthcare information directly from patients. I was a Trustee and Vice Chair of the Patients Association from 2015-2021, helping with their digital infrastructure and strategy. I have participated in several PPIE initiatives including Google Deepmind, the PHIMed study on Patient-Held Information to support medicines optimisation, and the IQVIA Cancer Data Network Clinical Advisory Group. For much of my professional career I was responsible for marketing communications, website content or scientific knowledge transfer, and in other roles I was responsible for customer experiences where usability and clarity were paramount. I recognise that clear, concise and consistent communication is at the heart of every patient encounter and that is why I value the opportunity to work with the CHARMER project.”
“My interest in patient involvement goes back to when I attended GP and hospital appointments with my parents to help with language and cultural translation. I could see they were not involved in the decision making of their care and treatment. As part of the PPI team with the CHARMER project, my experience and contribution from the patient perspective is valued, making it a real and meaningful part of the research.
I have been a member of the Patient Participation Group at my local GP Practice for the last six years as well as contributing to various PPI groups at the University of East Anglia and now University of Leicester.”